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Death of girl in Chinese gene-editing trial kept secret: Report

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Death of girl in Chinese gene-editing trial kept secret: Report
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Scientists move a step closer with precise editing of human embryo genesSuccessful gene therapy on child with rare Parkinson’s disease offers hope for other patientsSee more onChinaGeneticsMedical ethics/BioethicsMedical research

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Straits Times — World files mainly under world. We currently carry 1,305 of its stories.

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Straits Times — World
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Death of girl in Chinese gene-editing trial kept secret: ReportSign up now: Get ST's newsletters delivered to your inboxMei’s parents paid more than US$800,000 (S$1 million) to fund the experimental genetic therapy, but were not adequately informed about the risks, the Science and Retraction Watch report said. PHOTO: TIME LIFEPublished Jul 25, 2026, 01:39 AMUpdated Jul 25, 2026, 01:39 AMSet as preferred sourceSummariseA six-year-old Chinese girl died after an experimental gene-editing therapy aimed at treating a mild genetic condition, with her parents paying over US$800,000 and not fully informed of risks.The lead researcher published related animal study results without mentioning the girl's death, raising concerns about transparency and calls for a review of the published data.Experts…

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