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Girl’s death in China reveals human cost of unregulated science

Girl’s death in China reveals human cost of unregulated science

Vasudevan Mukunth· ·5 min read · 0 reactions · 0 comments · 28 views
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But as the new investigation by Science and Retraction Watch has found, the rifts between what the law says and how it is enforced have remained wide enough for a similar failure to recur.Dr. One emphasised exhaustive reviews before ‘first in human’ use. Another allowed investigator-initiated trials to proceed more rapidly.

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The Hindu · Vasudevan Mukunth
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Original publisherThe Hindu
Canonical URLhttps://www.thehindu.com/sci-tech/health/girls-death-in-china-reveals-human-cost-of-unregulated-science/article71268995.ece
Publication timeSun, 26 Jul 2026 15:53:38 +0530
Retrieval time2026-07-26T10:27:58.791Z
Last seen2026-07-26T10:27:58.791Z
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Excerpt methodFirst ~120 words (~800 chars) of extracted publisher body, fair-use limited.
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Publisher visitYes — open original
Substitutes article?No — link-out required for full text

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Basis: Derived from the published RSS/Atom feed. Contact: [email protected]. Reviewed: 2026-07-24.

Opening excerpt (first ~120 words) tap to expand

A six-year-old girl in China died in March 2025 after receiving what researchers said they believed was the world’s first base-editing therapy directed at the brain, according to an investigation by Science and Retraction Watch.The investigation has raised important questions about the oversight of an experimental personalised gene-editing trial and the way the researchers and their institutions communicated their choices.The girl had Snijders Blok-Campeau syndrome, a rare neurodevelopmental disorder caused by a mutation in the CHD3 gene.

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Excerpt limited to ~120 words for fair-use compliance. The full article is at The Hindu.

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