My daughter woke up with a numb arm and died two weeks later
Alicia-Adele Axiak, an 11-year-old girl from Caerphilly, died just 13 days after being diagnosed with an aggressive brain tumor. Her mother, Amanda Axiak, is now campaigning for increased research funding for brain tumors to prevent other families from experiencing similar tragedies. Alicia's story highlights the urgent need for better awareness and funding in pediatric brain cancer research.
- ▪Alicia-Adele Axiak woke up with a numb arm and was diagnosed with diffuse midline glioma, an inoperable brain tumor, shortly thereafter.
- ▪She died on April 25, 2025, just 13 days after her diagnosis, despite being a healthy and active child.
- ▪Amanda Axiak has since founded Alicia-Adele's Angels to raise awareness and funds for brain tumor research, which has received only 1% of UK cancer research spending since 2002.
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My daughter woke up with a numb arm and died two weeks laterJust nowShareSaveAdd as preferred on GoogleCatriona AitkenBBC WalesAmanda AxiakAmanda Axiak says Alicia-Adele was the "perfect" daughter who "had so much empathy and love"A woman whose daughter died less than two weeks after being diagnosed with an aggressive brain tumour is campaigning to change "appalling" research funding so her death "isn't in vain".In April 2025, Alicia-Adele Axiak, 11, from Caerphilly woke up with a slightly numb arm amid a week spent playing netball, doing gymnastics and preparing for an upcoming dance competition.But her mum Amanda said their lives were "ripped apart entirely" when an MRI found diffuse midline glioma (known as DIPG) - a cancerous brain tumour - and she died just 13 days later.The Welsh…
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