UK hypermobility sufferers wait up to 21 years for diagnosis, study suggests
To be diagnosed and treated, patients usually need to get a GP referral to a specialist for assessment. Photograph: parkerphotography/AlamyView image in fullscreenTo be diagnosed and treated, patients usually need to get a GP referral to a specialist for assessment. Seven out of 10 (71%) reported anxiety, 63% reported depression and 53% suffered from migraines.Kathryn Berg, the trial and data manager at the university’s Institute of Genetics and Cancer, said: “This study highlights the profound impact hEDS and HSD can have across every aspect of life.
- ▪To be diagnosed and treated, patients usually need to get a GP referral to a specialist for assessment.
- ▪Photograph: parkerphotography/AlamyView image in fullscreenTo be diagnosed and treated, patients usually need to get a GP referral to a specialist for assessment.
- ▪Seven out of 10 (71%) reported anxiety, 63% reported depression and 53% suffered from migraines.Kathryn Berg, the trial and data manager at the university’s Institute of Genetics and Cancer, said: “This study highlights the profound impact
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| Original publisher | The Guardian — World |
| Canonical URL | https://www.theguardian.com/society/2026/jun/15/uk-hypermobility-sufferers-wait-diagnosis-study-ehlers-danlos |
| Publication time | Sun, 14 Jun 2026 23:01:55 GMT |
| Retrieval time | 2026-06-14T23:12:33.609Z |
| Last seen | 2026-06-14T23:12:33.609Z |
| Headline source | Publisher (no WeSearch rewrite) |
| Excerpt source | publisher body |
| Excerpt method | First ~120 words (~800 chars) of extracted publisher body, fair-use limited. |
| Summary | WeSearch · cerebras-chat (WeSearch summarizer) |
| Summary source text | contentText |
| Citation coverage | Summary is a WeSearch-generated derivative; primary citation is the original publisher URL. |
| Cluster | 3HE4I5PEFzUt |
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| Ranking reason | Story pages are not engagement-ranked. Hub feeds use recency, with optional source-diversified chronological ordering (cap consecutive stories per source). No personalized ranking. |
| Publisher visit | Yes — open original |
| Substitutes article? | No — link-out required for full text |
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| Retrieval / RAG | May the content be exposed for third-party retrieval-augmented generation? | Not asserted |
| Model training | May the content be used to train AI models? | Not asserted |
| Commercial reuse | May the content be reused commercially? | Not permitted |
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To be diagnosed and treated, patients usually need to get a GP referral to a specialist for assessment. Photograph: parkerphotography/AlamyView image in fullscreenTo be diagnosed and treated, patients usually need to get a GP referral to a specialist for assessment. Photograph: parkerphotography/AlamyHealthUK hypermobility sufferers wait up to 21 years for diagnosis, study suggestsAwareness of disorders such as hypermobile Ehlers-Danlos syndrome is low among British healthcare professionalsDonna FergusonSun 14 Jun 2026 19.01 EDTSharePrefer the Guardian on GooglePeople in the UK with hypermobility conditions are waiting up to 21 years to be diagnosed while suffering from symptoms ranging from chronic pain to partially dislocated joints, research suggests.The study of more than 2,000…
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